Research with the Nightscout/CGM in the Cloud Community
Dr. Joyce Lee, a Pediatric Endocrinologist from the University of Michigan, is partnering with patients and caregivers from the Nightscout/CGM in the Cloud Community and the Nightscout Foundation to create opportunities for participatory design, citizen science, and open science diabetes research.
What is the Nightscout Project?
The Nightscout Project is a do-it-yourself mobile technology system for diabetes that was created by a global online community of patients and caregivers connected by a Facebook group called "CGM in the Cloud." Learn more about Nightscout and CGM in the Cloud below.
- Nightscout website: http://www.nightscout.info/
- You can read more about the evolution of the project in the Wall Street Journal, Citizens Hackers Concoct Upgrades for Medical Devices and the New York Times, A Do-It-Yourself Revolution in Diabetes Care.
- For a more detailed history of how it came about, read this blogpost by Kerri Sparling, We Are Not Waiting: CGM in the Cloud (Part 1).
- Read more about the mission of the Nightscout Foundation.
- Read our Viewpoint about Nightscout in JAMA: A Patient-Designed Do-It-Yourself Mobile Technology System for Diabetes: Promise and Challenges for a New Era in Medicine
(Free access if you register for the JAMA reader app) and Dr. Lee's blogpost.
CGM in the Cloud - A Collaborative Innovation Network
The CGM in the Cloud Community is an example of a collaborative innovation network ("COIN") which is defined as:
“a cyberteam of self-motivated people with a collective vision, enabled by the Web to collaborate in achieving a common goal by sharing ideas, information, and work." COINs “self-organize as cyberteams, teams that connect people through the Internet—enabling them to work together more easily by communicating not through hierarchies, but directly with each other. The individuals in COINs are highly motivated, working together toward a common goal because they share the same goal and are convinced of their common cause.” -Peter Gloor in Swarm Creativity
Creating a Research Collaborative Innovation Network
We believe that this is an opportune moment to tap into the capabilities and drive of the CGM in the Cloud community and the larger diabetes community to create a shared vision for patient-centered research. We are therefore designing a research COIN for individuals with type 1 diabetes and we need your help!
Sign up for our mailing list if you are interested in participating and/or want to hear more about our virtual and in person activities!
Learn more about Nightscout here:
John Costik: We #MakeHealth Fest 2014 Keynote
James Wedding: We #MakeHealth Fest 2015 Nightscout Symposium Presentation
Ken Stack: We #MakeHealth Fest 2015 Nightscout Symposium Presentation
Weston Nordgren: We #MakeHealth Fest 2015 Nightscout Symposium Presentation
Nate Heintzman: We #MakeHealth Fest 2015 Nightscout Symposium Presentation
Joyce Lee: Nightscout Research 2015 Quantified Self Public Health Symposium